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Going in order for the next 2 seasons, so 2024 is next. I just reviewed them, and I remember which ones I folded... I may have one or two of them left, but I'm going to do all of them.
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Today has been great. After filing my complaint with the internet, as partially anticipated, I got the result I was looking for. No idea how long it will last, nothing ever stays good forever. Nice to actually have a break though, just so much frustration that it is even a problem, this is just surrounded by stupidity sometimes.... there's this thing about being a heart surgery recipient: you walk around, and you sort of anticipate that everyone is smarter than you, everyone has something to teach you. But.. I don't think it really works that way. Just because I had heart surgery, I would be willing to bet that it may have affected some of my intelligenc3e capability: but I bet anything, not nearly as strong as people want to believe. I feel like I can place bets in situations where I win, where I know what is going on. So that's cool. If you really want to put a healthy spin on it: you call it diversity, where everyone has something they can learn from another person. You never get to learn everything, but you can learn some things.


Ok, so I'll spend a little bit talking about pain and malease. Unfortunately, my right shoulder flared a little while I was walking today. First time of this year, sigh. I walked about 2 miles today, it went mostly ok, the shoulder, ankle and lower back had some pain, but all very low grade. My bigger complaint of the day also isn't a big complaint? I have this weird malease sometimes, I think it's a side effect of the new meds, because I haven't had this kind of discomfort before taking them, and given how much better I am doing on the whole, it's not really a huge issue. It's not my chest at all, it's like my whole body is kind of JUST SLIGHTLY off. But... you know that thing where you look at a picture, and one little thing is maybe somewhat out of place.. maybe you can't even place what it is, or you have no way to fix it.. it's jsut that one little off thing, it's like that. So, before meds, sleep was very give or take for a while, and now sleep is mostly going better. I am just slightly one of those: "even if you get 8 hrs of sleep, you still feel tired" kind of people, but it's not really extreme. There are ways in which I can remember what I felt like in my early 20s, post heart surgery... and tbh: i feel better, and am doing better than I thought I would be. I thought I would have a second heart surgery by now, and I felt like there was only so much I was going to be able to recover, and I feel like I am doing waaaay better than I anticipated! The past 2-3 yrs took the downturn swing that I was expecting... but meeting with doctors has found me some resolution.


I'm curious what's going to happen on the mental illness/health front, like the entire system I guess I am thinking about. There are ways where I feel like this is a phase being set up for me, where I have to do something like graduate, that is my hope about it. Do we have people that are randomly going to be hospitalized on and off for an entire life time? Argh, I hope not, and it scares me. But there is that: "what is sick?" "How well can someone get?" "What things get forgiven, or what things get better?" I have gone more than a year without being hospitalized more than once since my first hospitalization. So, it's very confusing. I hope there's some sort of graduation "this has to stop" kind of thing, because it is annoying getting literally captured and detained. Last year, I was hospitalized 3 times, and all three times were voluntary, but one or two times in particular were pretty horrible, the circumstances surrounding. I am trying to simply be ok... and it doesn't always work for me.

A nice day.

Feb. 2nd, 2026 09:49 am
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I'm going to go out there and try to have a nice day.. but I tend to feel that my nice days are ruined very fast.
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No chest problems at all today! A little bit of exhaustion so I took a nap and then felt better.


Then I did some origami: AoT 2022. I wanted to finish the final 5 pieces today, but I don't have enough energy to do that much I think. I didn't even have 5 readied grids.. so I was able to finish getting all the grids prepared, and then I did two projects, so probably tomorrow or the next day, I should have the first 2 years worth of projects finished! Everything after that is on 24x.. I have a few of those grids prepared and ready to go, still need to do a lot more though.


Going to do more yarn work too, cool.


Did not go ice skating this weekend, not sure if I will do anymore this season or not.

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Literally: why did so many people go out of their way to get close to me at high speeds in their vehicles? I hope they all get tickets for that, maybe even temporary revoking of their licenses. Today was fine in that way. I walked about a mile, great.

I made it back, and had a new paper cutter that I tried out, and now I have a 32x, almost 64x hexagonal grid. I am tired after folding that much, but it was nice. This is my second 64x grid that I am making.

Chest has felt nearly perfect for most of the day, some "light afib" while visiting in standard ways today. Currently, chest has zero complaints, and instead I am reeeaaally tired: top heavy, don't feel like calling it mental, because I get so annoyed by people calling me mentally ill after everything that has happened to my chest: it is too disrespectful to deal with. I wouldn't even fully describe it as a headache, it's just exhaustion, top heavy exhaustion. Everyone that keeps calling me mental should go back to grade school for manners, I'm tired of the constant bullying and darwinism.

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Atrial fibrilation: fluttering/shaking of the heart muscle. I first learned the term when I was 21 yrs old, about 1 yr before my heart surgery: I climbed a mountain on a school trip, and did not feel well. Upon researching on the Internet, I found the term AFib, and described it as how I felt. I went to the hospital at that time: they said that it was not AFib, but I still disagree with them: one of those: "you can't tell someone what they are feeling" kind of things. The feeling that I am describing as LIGHT AFIB in these past few days is not as bad as my memory of how I felt at 21 even. Awkward.
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It's that in-between buffer, where I am telling myself that I feel better than I have for years... But I still feel precarious about it, still fragile. My current state is sometimes, even often light AFib, but like right now, it is so light that it barely seems worth mentioning. Sometimes it is a little more present, and still not that bad. It is nowhere near as bad as chest discomfort, but still a little scary, but waaaaay better. So, I am just trying to be thankful for now. It may just only be able to get so great for me, but this is really not bad.. and in case anyone was worried that chest discomfort was a 24/7 thing for me: it never has been. The closest was pre heart surgery. But unfortunately, the next closest was over the past few years.


I did a few more AOT pieces yesterday, all 2022.. I am almost finished that year also, which means going up to the 24x grids, but I already have 10 of those done also!! So, I think I will have the set finished by March, maybe April at lastest!!

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Got a good night's sleep, and feel better than the bad parts of yesterday. I am really hoping that no one plays with my safety today: I don't know why crime is being considered legal while putting sick people in jail is also being called kosher. This species has a lot to learn.
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Currently, I am a little scared that I was just on some upswing, and I'm going to fall back to bad health. It is entirely possible, maybe even likely. I feel so precarious today, and I am so exhausted from so many of my conversations with people being: "just do more." Or: "I hope someone knocks you out of consciousness soon." Which several of the messages that I have received in the past 24 hours could be translated to with little stretching.
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It is really growing in again!! The internet claims 12 to 18 months... this happened in November.. that's still a pretty significant heal time, but nowhere near what it said. Basically, it is like there is a softnail coming in first, more than half way there!! Ankle does not feel horrible. Today, I had about 15-20 minutes of not feeling well. Showed up to see my mom, and upon arriving, instantaneously felt not great, but definitely nowhere near as many of the bad times over the past some years now. I just.. laid down, and I think I took a nap, and when I woke up, it was better! It was a mostly take it easy day. I figured, with one entire AoT season down, why not take a breather. I did fold a little. Thought about crocheting just to do something different... but why bother? I love origami.
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pic 1


pic 2


pic 3


pic 4


I am obviously just showing off, but I figured people might like to see them!! About a week of work: not bad! Enjoy.

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A lot of my life, is laying down in fear that someone is going to come along and try to convince me to do something that I don't feel like my body is going to enjoy, feeling that my only response can be: "you want a heart surgery recipient to do what?"
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Facebook regularly shows me posts related to sickness for the past few years now, and it makes me miserable. I lived probably almost 15 yrs post heart surgery with a "normal"Facebook feed, where I did not get medical content at all. Then in more recent years, I guess someone must have passed some legislation that Facebook or social media in general can pillage my medical records and provide content for me based on that? They have one miserable heart surgery recipient that feels violated and made fun of, like I am being forced to live in the hospital, even when I am not there. I hope some one or people receive penalties for upsetting a heart surgery recipient. Sick people deserve livelyhoods outside the hospital too, and to force my life to be nothing but the hospital, is medical slavery.
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Well, I had to do something since I didn't make it to the arcade... I did 6 pieces from AoT 2023, which finished off the entire set!!!! woooooo. So that's 25 pieces there, and then I have about another 25 AoT pieces also finished, so I'm half way done, yay!!! Glad I had enough energy to get all that done, it was not a given. Ignition was the final piece that I did.. and by the time I got to it, I was very exhausted, it would have been possible to just stop and say: "tomorrow"... but it was literally the last piece of the season for me!! I could not stop there, so now it is done, woo hoo!!
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I had thought about going to the arcade to play pinball, but when I stepped outside, it was so cold, and my ankle hurt enough, I just.. another day. Definitely not my worst birthday! I've had a few really bad ones: can you believe, a pick up truck speeding in reverse directly at me is not even close to my worst birthday? WTF.

Ergh.

Jan. 26th, 2026 08:35 am
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I am officially 40, hooray. Unfortunately, my ankle is flaring today, and the bus that I usually use is not running, so I am afraid that it might be really hurt by the end of the day because I am keeping my routine up.
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I'm really going to be 40 tomorrow, can't believe it.

SNOW

Jan. 25th, 2026 01:05 pm
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almost 20 years post heart surgery, and I just walked over a mile in the falling snow and had an amazing time!!! Planning to do another mile later, so cool, literally lol.
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It is snowing out, and it is great. Tomorrow I turn 40 yrs old, can't believe it. Trying to decide if I want to make a trek to mom's place, I feel capable of doing it, but it's probably.. I mean, I get to decide how smart it is. Would be nice to see her, but, making a mile trek in this weather... yeah, I could do it, I'm thinking about it. I did some blocks earlier... will go out again and probably just go over there.


I did AoT d'22, yr2023... it is... so so. Did not come out perfect, which is odd, because I have definitely done great on trapezoids before.. but it's not that odd, because i know that this particular grid was not that great. Some of my pieces, you can look at, and say: "ah yes, that piece has the mark of the disabled."...but not ALL of them. woo woo. And in fact, most of these pieces, I have only done a single time, so it's not even like my disability is showing up after tons practice, I can sometimes make pieces look perfect on the very first try, yaaaay.

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